Revisión sobre la comunicación de los resultados de los ensayos clínicos a los participantes

PLoS Medicine – Communicating the Results of Clinical Research to Participants: Attitudes, Practices, and Future Directions

Communicating the Results of Clinical Research to Participants: Attitudes, Practices, and Future Directions

David I. Shalowitz*, Franklin G. Miller

Una interesante revisión del tema, con resultados no definitorios (lo que es razonable), y con buena bilbiografía para los interesados en el tema.

Shalowitz y Miller comienzan la discusión diciendo:
“As we have conducted a narrative review of studies concerning
communicating research results to participants, rather than a
systematic review, definitive conclusions about findings and their
ethical import cannot be drawn. Nevertheless, the data reviewed here
suggest several important implications. Available data consistently
indicate that research participants want aggregate and clinically
significant individual study results made available to them.

Participants’ desires do not necessarily determine policy, but respect
for participants requires taking their preferences seriously.
Though
investigators appear to support the communication of aggregate study
results, less is known about investigators’ attitudes towards
communicating individual research results or about the costs and time
required to do so. Future research should focus on these issues,
including ways to facilitate communication of results by addressing
investigators’ concerns.”

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